Happy DiAnniversay to me! On July 30, 1993 I was diagnosed with Type I diabetes (IDDM).Where have the last 20 years gone? In my life I have now had diabetes LONGER than without it.
A celebratory massive keg of Diet Moke is in my future today, and hopefully a cake with butter cream frosting. Which, off topic a bit, reminds me of one of my favorite quotes about diabetes, from the immortal Homer Simpson, which goes something like "...and I am one slice of Snickers pie away from losing my foot to diabetes! Mmmm....Snickers pie! [drooling]" Some things ARE totally worth it! Which makes me think a pecan pie slice might be more apropos....I know the carb count, of course. :)
Anyway, how has diabetes changed me and my life? What have I learned? I could write a novel about this, but naptime for my kidlets is only so long and I really want to post this TODAY, since it is a day of note.
Honestly, when I was diagnosed I thought it wouldn't be THAT big of a deal. After reading "The Baby Sitter's Club" books I was a little scared because one of the characters had "brittle diabetes" and described testing her urine for sugar and not even being able to eat processed cheese. But then we had a family friend who was know to "cheat" on her "diabetic diet,"so I thought I would be able to get by. Luckily, I was right. :)
Sure, diabetes is a BIG deal and it requires a lot of concentration and work. There are days when I am FRUSTRATED with the ups and downs (pun FULLY intended) of Type 1 and I am fed up with dealing with insurance companies and meeting huge deductibles within a few months and patronizing and/or ignorant health care providers. I am, however, blessed to have never felt sorry for myself or wonder "why me?" My philosophy is such that I know everyone has their respective trials or difficult things to go through in life. One of mine happens to be IDDM.
Educating myself has been the most crucial part of living with IDDM. The
more I know and understand, the better I can handle it (even though it
occasionally doesn't seem to matter because my body seems to be a rebellious two year old who wants to do her own thing). And how lucky am I to be living in a time when medical technology is so amazing? Heck, I still love that my glucose meter only takes 5 seconds, since for half of my diabetic life I had a dinosaur machine which took a huge drop of blood and 45 seconds to read. And I won't even get started extolling the benefits of my pump and continuous glucose monitor. AND---things will only be getting better! Love those diabetes researchers.
I have learned the supernal nature of Diet Moke and fully incorporated it into my life.
I need to become better at hiding my diabetes supplies and pump tubing from my small children. Who knew how fascinating a drawer full of test strips and pump supplies can be? Let alone my pump tubing! In all honesty though, I did, once during a memorable grocery shopping trip, give my pump to my baby in an effort to keep him occupied (because of course, the toys and snacks I brought were not fun enough). It worked for about 4 minutes, which made me thank my lucky stars I was diabetic and had such an interesting diversion.
I now know the best way to prepare for most diabetes emergency eventualities (although keeping my extra vial of emergency insulin cool in the car in the summer is still tricky), and only require a modest size suitcase to accommodate everything. For example,I have learned to keep an emergency syringe and a vial of insulin at homes where I are a frequent visitor, just in case the emergency insulin I keep in my tester in my purse runs out or gets too hot. Also, to take the tester with extra insulin with me at all times, just in case my pump tubing happens to be eaten by a goat at the zoo and I have to trek out to my minivan with two upset children in tow.
I have learned to have a sense of humor (most of the time) about diabetes and the various reactions it evokes.
I am STILL learning how to have good control without being low all the time. I HATE being low and having to have extra calories regardless of my appetite. Having juice or a snack before working out just seems counterproductive, and when I am low I don't feel like I can be efficient or productive. Cramming glucose tablets into my mouth while lecturing a full classroom is not on my list of favorite professional experiences. Being high is awful too, of course, but I feel like I can soldier on a bit better when I am at the higher end of the range than the lower end. Yeah....have to work at that.
I definitely have to learn about how to not leave tiny blood spots all over my habitat (i.e., steering wheel, sheets, small children, etc.), and how to corral those rouge test strips from taking over the world. Although I can argue that I am leaving my mark on the world.
So...whenever your DiAnniversary is (or your loved one's), may you continue to learn and grow with this challenge. You can do it!
All about balancing life with Type I diabetes, a family, a job, and fun!
Tuesday, July 30, 2013
Friday, July 26, 2013
Thanks Mom!
Since Mother’s Day was a while ago [okay, a few months by
now, but any mom will understand how time flies when juggling children and
work], I wanted to give a quick and mighty shout out to my mom.
I was diagnosed with type I diabetes when I was 14 years
old; the month before high school began. A tear comes to my eye (really, it
does, I am not just making poetic hyperbole) when I think of how my mom helped
me. The HUGE medical notebook tracking all of my tests, blood sugars, doctor’s visits/results, etc. The epic blood
glucose meter memory read back sessions (this was before the technological smartness of synching and downloading, when
you literally had to press a button again and again and go back through ALL the test results). The early morning balanced breakfasts she would prepare and pack so I
could eat it in the car on the way to school (don’t worry, I wasn’t driving…eating
Cream of Wheat while shifting and steering isn’t part of my skill set). The
weekends when she would wake me up to test my blood and give me my shot and a
snack so I could sleep in (remember…this was pre-pump days when you needed to
be consistent with the times of injections so your NPH wouldn’t run out and
your R had time to kick in before you ate).
She came with me to the doctor and asked the right questions to try
and understand the complicated things going on with my body, spent hours and
hours on the phone to fight with insurance companies to cover enough test
strips and pump supplies, while at the same time giving me my space and privacy
so I could learn how to handle life with diabetes. I always had her support.
Thanks Mom.
Now that I have tiny kids who are erratic (at best) in their
eating habits and life can get a bit hectic, I can’t imagine adding diabetes to
the mix. I do know that if one or both of them are diagnosed, I will deal with
it. Just as we all deal with our own diabetes diagnoses (sometimes with more flair and grace than others) even when friends and family may say “I don’t know
how you do it!” and we just think “we
HAVE to do it!”
So another shout out to my friends with diabetic children.
You are saintly. And to all diabetics who were diagnosed when they were
young…thank your mom! And if you are diabetic and have children who have diabetes... I am going to miss you because you have an EZ pass straight to heaven!!! Keep up the good work.
*Note: my PhD dissertation was all about the relationship between
teenagers with diabetes and their parents, and how privacy and independence and
diabetes all fit together. Be ready for a post about this sometime in the
future. Probably not near future, but future nonetheless.*
Monday, May 13, 2013
Goats...and insulin
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| THIS is the infamous goat. I was obviously not in a position to take a photo of the whole tug of war incident, but you can get an idea of the goat's character just by this shot. Shifty eyes. |
Some days my pump tubing seems to have a mind of its own.
Seriously, I demurely tuck the plastic coils into my pocket or beneath my
clothing, but before I know it the tubing has sprung away to meet a doorknob,
car gear shift, tree branch, etc. Usually it is just a minor annoyance (although
passersby probably get a kick out of seeing me stop short and jerk back as if yanked
by a giant puppeteer) but occasionally my site gets ripped out or the tubing breaks
(which inevitably occurs when I am being an ‘irresponsible diabetic’ and don’t
have backup supplies right with me).
Most recently I had a memorable moment with my errant tubing
and a farmyard animal. At the petting zoo with my kiddos, I was too busy making
sure my 18 month old didn’t experiment with the taste and texture of sheep poop
to really be concerned about the goat that was nuzzling my flank. I thought
this action was cute if not a little forward, but then I realized that he had
acquired a definite target…my pump! I
know my pump has some sort of baby/toddler/child magnetism, and now we know livestock
also sees the appeal. Sadly, the end of
this story is pretty predictable.
The goat had moved on from my actual pump, delicately taken
my tubing with his teeth and was about to make a run for it to enjoy the
delicious insulin infused plastic. It
turned into a bit of a tug of war with said ruminate, with me gently pulling on
my tubing to remove it from his mouth without getting bitten, and
the goat tenaciously gripping it in its mouth while edging backwards. Anyway, the
tubing stretched to an impossibly tiny plastic string before it snapped. Of
course I hadn’t brought in my kit with an extra needle and insulin vial, so
thus had to make the long pilgrimage back to the car. In 93 degrees. With an
upset 3.5 and 1.5 year old who did not want to leave the zoo only 15 minutes
after entering. Sigh.
The good news is that the tug of war DID indeed provide a
great deal of hilarity not only to my own offspring, but to the zoo worker
(who commented “Didn’t you see the sign that said you shouldn’t bring cell
phones or pagers in?” Oooooohhhh….don’t get me started on that one! But that is
a post for another day) and entire third grade population of a local elementary
school.
Monday, April 29, 2013
Eat it...just eat it!
![]() |
| THE CAKE IS MINE! |
Well. I don't know about you, but that doesn't fit ME at all. In fact, I have a relationship with butter cream frosting that could only be described as "complicated." And although I generally describe my eating habits as healthy and well balanced, I am not perfect by any stretch of the imagination.
What drives me nuts though, is when other people feel as though they have the freedom to "audit" me and say that I "shouldn't eat that." Oh, yeah, thanks for that memo. Because without your reminder, I would go into complete "diabetic shock" (don't you love that phrase?) due to my poor choices and ignorance.
Wow. I just realized how harsh that might sound, and I recognize that MOST people really do have the best of intentions when launching the whole "can you eat that" conversation. You have to understand that even complaining about these types of occasional comments makes me feel a little cliche, but because it is so prevalent, I feel the need to mention it. Not only because it feels good to vent, but also because it is one of the most common pet peeves for any diabetic.
![]() |
| LET THEM EAT CAKE!! |
Maybe I have a problem with trying to please everyone, but am I the only one who has ever "audited" what they ate in order to not freak out other people? Don't get me wrong; I take most opportunities to further diabetes education and chat up the miracle of carb counting, but there are times when it isn't appropriate to dominate the dinner discussion. Or I am just too tired to explain myself for the 1, 345,624th time.
A hypothetical case in point: abstaining from the dessert tray at a family reunion party because my sweet great aunt** would be soooo worried if I had a molten chocolate explosion cake with an ice cream chaser, and my type II great uncle would be jealous and bitter and confused that I am indulging when he really can't (according to his treatment plan, not my judgment). Of course, I then remove my emergency cookie dough stash from the freezer when I get home so I can get my sweet treat fix that overtook my soul when I saw the dessert tray.
**Occasion and relationships have been changed to protect the adorably clueless
So...what are your food auditing experiences? When, where, and why do you find yourself silently altering your food intake in response to others?
Monday, April 22, 2013
Addict Roll Call: Moke and Lepsi fans unite!
Almost every diabetic I know LOVES diet soda, typically one of the two Diet Cola varieties since it is usually the only kind that is readily available at every gas station or restaurant. Although I am a HUGE Diet Moke fan (names have been changed to protect the innocent), I understand that some people appreciate Diet Lepsi, (which I personally think tastes more like runoff from a feedlot, but it will do in a pinch) and I will still like (but maybe not respect) you if you are a Lepsi fan, but the common denominator between Lepsiers and Mokers alike is a deep and undying appreciation of your special brew.
Lest I be accused of only being addicted to the caffeine, I want to reassure you that I am currently enjoying cans of CAFFEINE FREE Diet Moke. Not to say that I don't supplement with the *real* stuff. I just love soda!
But, aside from hearing your testimonials to the amazingness of Diet Lepsi and Moke, tell me about your love affair. Did you like your diet soda even before you got diabetes? What role has diabetes played in your appreciation of the cola? And if you are feeling really brave, you can admit how many sodas you (or your "friend") drink every day. What lengths would you go to to obtain a fix? AND, if you are of the rare breed who doesn't enjoy it...how did you quit?:)
Cheers! I raise my cup of diet bliss to you! It is amazing how much happiness can be found in 64 ounces of fountain-y goodness.
Lest I be accused of only being addicted to the caffeine, I want to reassure you that I am currently enjoying cans of CAFFEINE FREE Diet Moke. Not to say that I don't supplement with the *real* stuff. I just love soda!
But, aside from hearing your testimonials to the amazingness of Diet Lepsi and Moke, tell me about your love affair. Did you like your diet soda even before you got diabetes? What role has diabetes played in your appreciation of the cola? And if you are feeling really brave, you can admit how many sodas you (or your "friend") drink every day. What lengths would you go to to obtain a fix? AND, if you are of the rare breed who doesn't enjoy it...how did you quit?:)
Cheers! I raise my cup of diet bliss to you! It is amazing how much happiness can be found in 64 ounces of fountain-y goodness.
Humor, with a side of blood
At age 14, within the first 6 months of being diagnosed, I made a "Top Ten list of things to NEVER tell a diabetic." At the risk of embarrassment, I hesitate to disclose that I am not sure where this original list can be found. See, it was saved on ummm...a disk. A floppy floppy disk, not even a 3 1/2 inch floppy disk. On an Apple II GS computer with a program called "Bank Street Writer" You can start laughing now; I don't mind. Think of all the character building experiences us "old skool" folks have had before the modern conveniences of flash drives, high speed internet, and email.
At any rate, the things on the list included something like the following:
*You can't eat that!
*My great aunt Bertha had diabetes and she had both legs amputated and went blind.
*If I get some of your blood on me, would I get diabetes too?
*You must have eaten a lot of sugar to get diabetes so young!
*You're low! Let me bring you some Diet Soda really quick.
*Sometimes I wish I had diabetes because I want more attention
*Do you have the really bad kind of diabetes?
*Oh, my doctor said i have "just a touch" of diabetes
*Oh no! Your blood sugar is 100! That is so high!
* I know how you feel, I have had a cold last month and it is miserable to be sick all the time.
The list brought a lot of laughs to a lot of diabetics (or at least a lot of polite people humoring me), and I think making the list helped me process and positively handle some of the stinky aspects of diabetes management. If, for example, I had a negative experience at school with the nurse, I thought "Ooohh...that one is TOTALLY making the list."
Recently, on a popular social networking site (perhaps you have heard of "Facebook"?) I stumbled across an amazingly awesome thing called "Type 1 diabetes memes." It is full of witticisms, caption contests, and photos that celebrate the culture of IDDM. So, a shameless plug from someone who has absolutely nothing to gain from the recommendation. If you are on FB, have a sense of humor, are a type I or have a close family/friend with type 1, check it out. It is great to find not only funny bits about IDDM, but find a bunch of people who are in your proverbial shoes.
Laughter is the best medicine, right? I find it much more useful than my insulin pump. ;)
At any rate, the things on the list included something like the following:
*You can't eat that!
*My great aunt Bertha had diabetes and she had both legs amputated and went blind.
*If I get some of your blood on me, would I get diabetes too?
*You must have eaten a lot of sugar to get diabetes so young!
*You're low! Let me bring you some Diet Soda really quick.
*Sometimes I wish I had diabetes because I want more attention
*Do you have the really bad kind of diabetes?
*Oh, my doctor said i have "just a touch" of diabetes
*Oh no! Your blood sugar is 100! That is so high!
* I know how you feel, I have had a cold last month and it is miserable to be sick all the time.
The list brought a lot of laughs to a lot of diabetics (or at least a lot of polite people humoring me), and I think making the list helped me process and positively handle some of the stinky aspects of diabetes management. If, for example, I had a negative experience at school with the nurse, I thought "Ooohh...that one is TOTALLY making the list."
Recently, on a popular social networking site (perhaps you have heard of "Facebook"?) I stumbled across an amazingly awesome thing called "Type 1 diabetes memes." It is full of witticisms, caption contests, and photos that celebrate the culture of IDDM. So, a shameless plug from someone who has absolutely nothing to gain from the recommendation. If you are on FB, have a sense of humor, are a type I or have a close family/friend with type 1, check it out. It is great to find not only funny bits about IDDM, but find a bunch of people who are in your proverbial shoes.
Laughter is the best medicine, right? I find it much more useful than my insulin pump. ;)
Fun with moving
The last time I wrote (TWO YEARS ago... my, how time flies when you are busy with toddlers!), I was a bit agitated with finding diabetes care in a new city. The big secret behind THAT post was that I was already pregnant with our second child, and it was super imperative that I find good physicians to be sure we were both healthy. After I called my doctor from the BDC, he made a few calls and opened the door for me to get in and see one of his rock star physician colleagues. A big shout out to Dr. Thomas Moore and his staff in San Diego. Thanks for a great experience!
Now, two years later, I am in the same boat AGAIN (although I am not pregnant). Due to my husband's job, we now live in the Fresno, CA area, which is about 6 hours away from our recent home in San Diego. Back to the not-so-fun-and-deductible-reaching drawing board of finding health care. Sigh.
This time around, I decided to try and find health care professionals ASAP after moving. After a great deal of research and yelp-ing, I had several appointments with different providers and after a few misses, I think I finally found a "hit" with a good diabetes doctor. Of course, this journey was not without its pitfalls. Finding babysitters to watch my 3.5 year old and 1.5 year old in a brand new area was tough, finding the actual offices was difficult (thanks for the faulty GPS, not-so-smartphone!), and finding a compatible doctor was hard. BUT! I think we have a winner.
Sooooo....things seem to be happy on my end here. How about you? What have been your positive and negative experiences with finding good diabetes care? Any tips for finding a good doctor those who have just been diagnosed?
Now, two years later, I am in the same boat AGAIN (although I am not pregnant). Due to my husband's job, we now live in the Fresno, CA area, which is about 6 hours away from our recent home in San Diego. Back to the not-so-fun-and-deductible-reaching drawing board of finding health care. Sigh.
This time around, I decided to try and find health care professionals ASAP after moving. After a great deal of research and yelp-ing, I had several appointments with different providers and after a few misses, I think I finally found a "hit" with a good diabetes doctor. Of course, this journey was not without its pitfalls. Finding babysitters to watch my 3.5 year old and 1.5 year old in a brand new area was tough, finding the actual offices was difficult (thanks for the faulty GPS, not-so-smartphone!), and finding a compatible doctor was hard. BUT! I think we have a winner.
Sooooo....things seem to be happy on my end here. How about you? What have been your positive and negative experiences with finding good diabetes care? Any tips for finding a good doctor those who have just been diagnosed?
Wednesday, March 23, 2011
A trip to the Dark Ages...
I have been incredibly spoiled in my diabetes care. Right after my diagnosis at age 14, our PCP sent me to the Barbara Davis Clinic (BDC) because he recognized that my care there would be much more complete than what he could give. Thank you Dr. Chesley--it was the best referral you ever made.
The BDC is an amazing center for the research and treatment of insulin dependent diabetes. I have participated in several research studies there, and the treatment options are cutting edge technology. The blood test that measures average glucose levels (an A1C) is taken via a finger prick and the result is available within 4 minutes. The staff really understands TYPE I diabetes and do everything in their power to help you control blood glucose levels. There are dietitians, nurses, and diabetes educator on hand IF YOU NEED THEM. My doctor is superb and knows that what works in theory doesn't always work in a type I body. I never feel censured when, after trying my best, my numbers are not perfect. Quite frankly, I find myself running out of superlatives to describe my experience at the BDC.
I love the BDC so much that I have been flying back to Colorado every 3 months to attend my appointments. I have been searching for a good diabetes doctor here in San Diego, but
1. Most have waiting lists of 4-5 months
2. Most are not accepting new patients
3. Most have no clue about the fine details of Type I.
A quick delineation between the different kinds of diabetes. Most diabetics in the world have Type II, also called adult onset, which means that the body either 1. Doesn't produce ENOUGH insulin, 2. Doesn't USE the insulin the body produces efficiently, or 3. Both 1 and 2. Gestational diabetes is basically Type II while a woman in pregnant. Due to the hormonal roller coaster or pregnancy, 1-3 can occur. The treatment of Type II diabetes focuses on helping your body "remember" how it is supposed to work: a healthy diet, exercise, etc. Occasionally oral medications are used to help the body use insulin more effectively, and in the end some patients will end up using insulin.
Type I (juvenile diabetes) is an autoimmune disease, which basically means that the body's immune system destroys some part of the body, in this case the insulin producing cells of the pancreas. IMMEDIATELY upon diagnosis, someone with Type I MUST begin taking insulin. Without insulin, the body doesn't work...sugar from food, and naturally produced glucose from the body, clog up the kidneys, eyes, circulatory system, and the body doesn't have any fuel, since the glucose stays in the blood. AT this point, if I didn't take any insulin, I would be dead within a few days. Not to be melodramatic or anything. Only about 8% of all diabetics have Type I.
There are tons of treatment for type I, and I use an insulin pump combined with a continuous blood glucose monitoring system. I have two needles in me...one is attached to my pump via a tube and gives me insulin. The other senses my blood glucose level and sends a message to my pump so I can see what my blood glucose levels are.
So much for my "quick" explanation. At any rate, hopefully you can see that the differences between the kinds of diabetes.
AT the beginning of January I tried to get my foot in the door with an endocrinologist here in San Diego. Yesterday I finally had my appointment.
The doctor I went to knows about insulin pumps and continuous glucose monitoring systems, but is clearly used to dealing with the other 92% of people that have diabetes. He really wanted to focus on making diet and exercise changes so "I don't use so much insulin." Really? I exercise about 6 hours every week, and eat a fairly stringent diet. I have been dealing with my diabetic body and how it works (or actually, doesn't work!) for 18 years.
The doctor was pleasantly surprised that I "know exactly what I am talking about" in terms of what is happening with my body, and that my eye exam and kidney tests were current. He was a little shocked that I had just been in to see my endocrinologist in Denver in January, and was amazed that I go there every 3 months (which is the absolute recommendation for check-ups for Type I).
After spending 15 minutes with me, he said "Well, our time is up so next time we will cover some more issues at your next appointment." The kicker is that this doctor is so busy that his next opening for an appointment is at the END OF JULY. In the meantime, he will have a bevy of people calling me: the diabetes educator who "knows" about pumps, the dietitian, and a different diabetes educator. AT this point, I feel like I am a diabetes educator myself (quiz me on a carb value...any carb!) and DON'T NEED the calls. I need a knowledgeable doctor who can help me tweak some insulin rates and uncover hidden pitfalls I might not think about.
He sent me down to get a blood draw for my A1C value, where the line to GET said blood draw was over 45 minutes (keep in mind that my 16 month old was at a babysitter's house and I had already been gone for close to 2 hours) and then I would have to wait 3 days for the results. I went straight to my car, gently wept while driving to pick up the baby, and then got mad.
I feel like I was enjoying living in a sparkling house complete with remote controlled appliances and a bidet, and now I am thrust into a broken-down shack with an outhouse. I guess the commute will continue.
The BDC is an amazing center for the research and treatment of insulin dependent diabetes. I have participated in several research studies there, and the treatment options are cutting edge technology. The blood test that measures average glucose levels (an A1C) is taken via a finger prick and the result is available within 4 minutes. The staff really understands TYPE I diabetes and do everything in their power to help you control blood glucose levels. There are dietitians, nurses, and diabetes educator on hand IF YOU NEED THEM. My doctor is superb and knows that what works in theory doesn't always work in a type I body. I never feel censured when, after trying my best, my numbers are not perfect. Quite frankly, I find myself running out of superlatives to describe my experience at the BDC.
I love the BDC so much that I have been flying back to Colorado every 3 months to attend my appointments. I have been searching for a good diabetes doctor here in San Diego, but
1. Most have waiting lists of 4-5 months
2. Most are not accepting new patients
3. Most have no clue about the fine details of Type I.
A quick delineation between the different kinds of diabetes. Most diabetics in the world have Type II, also called adult onset, which means that the body either 1. Doesn't produce ENOUGH insulin, 2. Doesn't USE the insulin the body produces efficiently, or 3. Both 1 and 2. Gestational diabetes is basically Type II while a woman in pregnant. Due to the hormonal roller coaster or pregnancy, 1-3 can occur. The treatment of Type II diabetes focuses on helping your body "remember" how it is supposed to work: a healthy diet, exercise, etc. Occasionally oral medications are used to help the body use insulin more effectively, and in the end some patients will end up using insulin.
Type I (juvenile diabetes) is an autoimmune disease, which basically means that the body's immune system destroys some part of the body, in this case the insulin producing cells of the pancreas. IMMEDIATELY upon diagnosis, someone with Type I MUST begin taking insulin. Without insulin, the body doesn't work...sugar from food, and naturally produced glucose from the body, clog up the kidneys, eyes, circulatory system, and the body doesn't have any fuel, since the glucose stays in the blood. AT this point, if I didn't take any insulin, I would be dead within a few days. Not to be melodramatic or anything. Only about 8% of all diabetics have Type I.
There are tons of treatment for type I, and I use an insulin pump combined with a continuous blood glucose monitoring system. I have two needles in me...one is attached to my pump via a tube and gives me insulin. The other senses my blood glucose level and sends a message to my pump so I can see what my blood glucose levels are.

So much for my "quick" explanation. At any rate, hopefully you can see that the differences between the kinds of diabetes.
AT the beginning of January I tried to get my foot in the door with an endocrinologist here in San Diego. Yesterday I finally had my appointment.
The doctor I went to knows about insulin pumps and continuous glucose monitoring systems, but is clearly used to dealing with the other 92% of people that have diabetes. He really wanted to focus on making diet and exercise changes so "I don't use so much insulin." Really? I exercise about 6 hours every week, and eat a fairly stringent diet. I have been dealing with my diabetic body and how it works (or actually, doesn't work!) for 18 years.
The doctor was pleasantly surprised that I "know exactly what I am talking about" in terms of what is happening with my body, and that my eye exam and kidney tests were current. He was a little shocked that I had just been in to see my endocrinologist in Denver in January, and was amazed that I go there every 3 months (which is the absolute recommendation for check-ups for Type I).
After spending 15 minutes with me, he said "Well, our time is up so next time we will cover some more issues at your next appointment." The kicker is that this doctor is so busy that his next opening for an appointment is at the END OF JULY. In the meantime, he will have a bevy of people calling me: the diabetes educator who "knows" about pumps, the dietitian, and a different diabetes educator. AT this point, I feel like I am a diabetes educator myself (quiz me on a carb value...any carb!) and DON'T NEED the calls. I need a knowledgeable doctor who can help me tweak some insulin rates and uncover hidden pitfalls I might not think about.
He sent me down to get a blood draw for my A1C value, where the line to GET said blood draw was over 45 minutes (keep in mind that my 16 month old was at a babysitter's house and I had already been gone for close to 2 hours) and then I would have to wait 3 days for the results. I went straight to my car, gently wept while driving to pick up the baby, and then got mad.
I feel like I was enjoying living in a sparkling house complete with remote controlled appliances and a bidet, and now I am thrust into a broken-down shack with an outhouse. I guess the commute will continue.
Wednesday, March 9, 2011
Fun with lows
When I got married, I got a rude awakening. I always thought of myself as one of those lucky diabetics that doesn't "get weird" when I get low. It turns out that I do have some interesting quirks that come out when my blood sugar dips, which my husband pointed out to me.
Occasionally (not every time I am low) I get really quiet, or take a long time to answer a simple question. I stumble over my words (probably because my tongue gets numb and tingly) and I have been known to laugh at random comments like a hyper third grader sucking helium. It is important to note that I don't notice when I do this, which is why I was surprised to discover this about myself.
I have never "freaked out" (phrase taken verbatim from one of my friend's parents..."Jeanette, I don't want you to freak out on me") and I am lucky enough to wake up when my glucose is dropping (it makes for some interesting dreams...whatever is happening in my dream changes to reflect a low blood glucose level...once I dreamed that my blanket turned into a blueberry pop tart, which is weird in and of itself since I only like strawberry pop tarts, and I ate my entire blueberry pop tart blanket but was confused because I was still low, which is when I woke up and ate a strawberry pop tart).
Anyone with diabetes or anyone that has a loved one with diabetes probably has some entertaining stories about being low. Let's hear them! Laughter is the best medicine.
Occasionally (not every time I am low) I get really quiet, or take a long time to answer a simple question. I stumble over my words (probably because my tongue gets numb and tingly) and I have been known to laugh at random comments like a hyper third grader sucking helium. It is important to note that I don't notice when I do this, which is why I was surprised to discover this about myself.
I have never "freaked out" (phrase taken verbatim from one of my friend's parents..."Jeanette, I don't want you to freak out on me") and I am lucky enough to wake up when my glucose is dropping (it makes for some interesting dreams...whatever is happening in my dream changes to reflect a low blood glucose level...once I dreamed that my blanket turned into a blueberry pop tart, which is weird in and of itself since I only like strawberry pop tarts, and I ate my entire blueberry pop tart blanket but was confused because I was still low, which is when I woke up and ate a strawberry pop tart).
Anyone with diabetes or anyone that has a loved one with diabetes probably has some entertaining stories about being low. Let's hear them! Laughter is the best medicine.
Sunday, March 6, 2011
Once upon a time...
Everyone has a good story to share, whether it is about the time your car broke down on the freeway and you were rescued by a motorcycle gang wearing tutus, the time you singlehandly managed to cause a power outage for the entire city, or the time your pants fell down in the school cafeteria when you were in fourth grade.
People who have been diagnosed with a chronic illness, like diabetes, all have a good story to share about the time they were diagnosed. Sadly, not all of these stories are filled with humor and warm fuzzies, but most stories are poignant experiences detailing changes in identity and lifestyle.
I was diagnosed when I was 14 years old, the month before I started high school. I had been feeling tired and thirsty all summer, but we chalked it up to me being busy with early morning swimming team, theater workshop, and fun on the lake boating and camping.
My mother had the feeling something was wrong, and her fears were especially piqued during a short road trip. I drained our family's two gallon jug of water within the first 45 minutes of the trip, and was so desperate for water that I tried to fill up the jug with sprinklers from a rest stop. The water was a horrible rusty color and there was a sign that said "water is non-potable," but I tried to drink it anyway. Luckily it tasted so bad that I wasn't able to drink much.
At our destination, the water also tasted bad, so I satiated my thirst with regular soda. In hindsight, that made everything worse, but of course we didn't know that at the time.
A month after the trip I was preparing to go camping. I thought I had a bladder infection, so we went to the doctor to get it taken care of before going into the wilderness. While I was providing the urine sample, my mom asked the doctor if he could run a diabetes test as well. He thought she was being overprotective, but did it anyway.
When the doctor returned to the exam room several minutes later, his face was grave as he explained that I had a little bladder infection but an abnormally large amount of sugar spilling into my urine. He sent me down to the lab to get a blood draw and said he would call with the results the next afternoon.
That same fateful Friday my older brother had a collision with a car which totalled his bike, and my sister found her treasured opal necklace crushed in the garage. My mom loaded us, the three kids, into the car and took us to the fire station, where my dad was at work. She had us share our woes with him, and I went last. I said in a rather casual manner "yeah, I might have diabetes." I remember my parents exchanged a meaningful glance, but I still wasn't letting it sink in. It was, after all, not a real diagnosis. If something was really wrong the doctor would have done something at the appointment.
Everyone else was worried, but I was fairly cavalier about the situation. I even tried to wheedle my mother into taking us out for ice cream, because if I DID end up having diabetes, I would never get the chance to have ice cream again. She did not comply.
The next morning, at 7:30 AM, we heard the phone ring. I knew what the call must be, and I was right. A few minutes after the end of the murmurs on the phone, my entire family came into my room to wake me up (like I was asleep!). I went into the hospital immediately, and the rest is history.
Looking back at my diagnosis story (can you believe this is the short version?), I think of the emotions felt not only by me, but by my family and friends. The support I felt at the hospital was incredible, and sometimes I have to remind myself that diabetes is not just MY disease, but a condition that affects the important people in my life.
I also am reminded about how blessed I am with how far technology has come since my diagnosis in 1993. My first meter took 45 seconds to get results, I was on several injections a day, and I was told that I couldn't eat anything where any form of sugar was one of the first three ingredients. Wow. Now I have my pump, a continuous blood glucose monitoring system, and a great carb counting system.
What is your diagnosis story? I'd love to hear it!
People who have been diagnosed with a chronic illness, like diabetes, all have a good story to share about the time they were diagnosed. Sadly, not all of these stories are filled with humor and warm fuzzies, but most stories are poignant experiences detailing changes in identity and lifestyle.
I was diagnosed when I was 14 years old, the month before I started high school. I had been feeling tired and thirsty all summer, but we chalked it up to me being busy with early morning swimming team, theater workshop, and fun on the lake boating and camping.
My mother had the feeling something was wrong, and her fears were especially piqued during a short road trip. I drained our family's two gallon jug of water within the first 45 minutes of the trip, and was so desperate for water that I tried to fill up the jug with sprinklers from a rest stop. The water was a horrible rusty color and there was a sign that said "water is non-potable," but I tried to drink it anyway. Luckily it tasted so bad that I wasn't able to drink much.
At our destination, the water also tasted bad, so I satiated my thirst with regular soda. In hindsight, that made everything worse, but of course we didn't know that at the time.
A month after the trip I was preparing to go camping. I thought I had a bladder infection, so we went to the doctor to get it taken care of before going into the wilderness. While I was providing the urine sample, my mom asked the doctor if he could run a diabetes test as well. He thought she was being overprotective, but did it anyway.
When the doctor returned to the exam room several minutes later, his face was grave as he explained that I had a little bladder infection but an abnormally large amount of sugar spilling into my urine. He sent me down to the lab to get a blood draw and said he would call with the results the next afternoon.
That same fateful Friday my older brother had a collision with a car which totalled his bike, and my sister found her treasured opal necklace crushed in the garage. My mom loaded us, the three kids, into the car and took us to the fire station, where my dad was at work. She had us share our woes with him, and I went last. I said in a rather casual manner "yeah, I might have diabetes." I remember my parents exchanged a meaningful glance, but I still wasn't letting it sink in. It was, after all, not a real diagnosis. If something was really wrong the doctor would have done something at the appointment.
Everyone else was worried, but I was fairly cavalier about the situation. I even tried to wheedle my mother into taking us out for ice cream, because if I DID end up having diabetes, I would never get the chance to have ice cream again. She did not comply.
The next morning, at 7:30 AM, we heard the phone ring. I knew what the call must be, and I was right. A few minutes after the end of the murmurs on the phone, my entire family came into my room to wake me up (like I was asleep!). I went into the hospital immediately, and the rest is history.
Looking back at my diagnosis story (can you believe this is the short version?), I think of the emotions felt not only by me, but by my family and friends. The support I felt at the hospital was incredible, and sometimes I have to remind myself that diabetes is not just MY disease, but a condition that affects the important people in my life.
I also am reminded about how blessed I am with how far technology has come since my diagnosis in 1993. My first meter took 45 seconds to get results, I was on several injections a day, and I was told that I couldn't eat anything where any form of sugar was one of the first three ingredients. Wow. Now I have my pump, a continuous blood glucose monitoring system, and a great carb counting system.
What is your diagnosis story? I'd love to hear it!
Saturday, March 5, 2011
A bit about balance...
Balancing is not my strong suit. The only way I could ever ride a skateboard was by holding a jump rope while my brother pulled me on his bike. Slalom skiing was unsuccessful, and let’s not even talk about the unmitigated disaster that was the balance beam in gymnastics. I find it ironic, then, that I have a health condition that is so dependent on balance.
I have insulin dependent diabetes mellitus, which means that my body does not produce insulin. This means I have to test my blood and give myself insulin and try to keep my blood glucose levels hovering in a pretty narrow range. Too much insulin results in a low blood glucose level, while not enough insulin results in a blood glucose level that is too high.
Factor in food, exercise, stress, illness, and random acts of nature and the amount of insulin that works one day to keep glucose levels in check doesn’t work the next (a further explanation of how diabetes works will be posted later as a reference, for those who are unfamiliar with the nuts and bolts of diabetes). Some days it seems as though I merely pass through my target range and wave hello as I plummet down or shoot up.
Luckily, I have fabulous resources to help me track and monitor my health balancing act, and although I may occasionally wobble, I don’t fall. I need to be in control of my diabetes so I can do all the things I want to do, but I want to do everything without having diabetes be my primary focus. This blog is devoted to sharing my highs and lows (pun fully intended) as I strive for finding a healthy balance in my life with diabetes.
I would love to hear your insights and reflections, from struggles to successes. Whether YOU have diabetes or someone you know and love has diabetes, I want to hear about your experiences as you balance life and diabetes.
I would love to hear your insights and reflections, from struggles to successes. Whether YOU have diabetes or someone you know and love has diabetes, I want to hear about your experiences as you balance life and diabetes.
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